Our sweet son, Everett, was born very sick on April 17th, 2018.

He was diagnosed with Hypoxic Ischemic Encephalopathy in addition to a very rare and fatal neurological disorder, Metachromatic Leukodystrophy.

We let him know it was okay to let go and that we would all be okay. He is no longer sick or in pain and has changed our lives forever. He will live on through us and by helping others through this foundation. Everett’s great-grandmother, Jean, often used the saying, “whatever it takes”. This was our motto in the NICU and the inspiration behind the foundation name.